Privacy statement:
Effective January 2023
This website privacy statement is provided by the FLUSH-IT study group (“the crew”). It contains information about our practices for collecting, using, and safeguarding the information you provide to us through this website.
Personal information
In order to access certain options, offers, or services on our site, you will be asked to provide relevant personal information, such as contact information for enrollment in the registry or information about the service you are seeking. You always have the option of unsubscribing from our programs at any time. Occasionally, we may invite you to participate in a survey or poll about our registry. Your responses will be anonymous unless you choose to provide your contact details so that we can provide you with additional information regarding the survey or poll or the registry itself.
Sharing your information
Consistent with applicable laws and requirements, as well as with the data protection notices that we provide in relation to any research, the personal information that you provide to us through this website may be combined with other information that we have about you from other sources, may be used by the crew for marketing and promotional purposes (ie., to encourage to become a contributor to the registry), and/or may be shared with contributing centres or visitors of this webpage (i.e., locations of contribution, should they become contributing centres). We may also share some of it with third-party partners who assist us with initiatives such as improving our website. When we do share this information, we require those third parties to adopt measures to protect your information in a manner consistent with this statement. We do not rent or sell your information or otherwise share it with any unaffiliated third party for their own use.
There may also be limited types of legal situations in which we are required to share some of your information, such as in the event of a transfer of sponsorship of the registry, in connection with regulatory or legal matters, where required for safety and security, or as otherwise required or permitted by law. When we do share your information in such a situation, we limit the transfer to the information that is relevant under the circumstances and, to the extent possible, require the recipient to uphold an equivalent level of protection for the data.
Cross-border data transfers
As a globally active registry, your information will be transferred and stored in the EU (Germany).
Cookies and web tracking
We use cookies and other similar web technologies on our websites. Please read about our practices for using cookies and similar technologies, including those from third parties who we may use to advertise our registry to you when you visit our, or other non-affiliated websites in the future, by clicking on our cookies notice and disclosure statement.
Safeguarding your information
To be consistent with applicable laws, we have adopted reasonable and appropriate measures that are designed to safeguard the confidentiality of your information and protect it from loss, misuse, alteration, destruction, or unauthorized access. Please note that, despite our efforts, there is always some risk that your data will be improperly accessed, including, for example, during your transmission of the information to us. We kindly remind you that you will not be asked to insert any password, if accessing our webpage including subpages (i.e., Appendix) or are downloading content from it i.e. SOP).
If you need to update or correct your personal information profile, you may do so directly on our website or by contacting us at the address below.
Policies for children
This website is not intended to collect or maintain any information from minors under the age of 18 (or any other higher age threshold for children required by applicable data protection law). If we learn that we collected any information from anyone under the relevant age, we will purge it immediately, except for responding to a question or inquiry on a one-time basis from the individual.
Right of access, correction, or objection
We take reasonable steps to ensure that your personal information on file with us is accurate and up-to-date. In that regard, we invite you to contact us to update your information, such as your email address if it changes, so that you can continue to receive the information that you have requested from us. In accordance with applicable laws, you may also access or request correction of the information that we have retained about you, object to the processing of your data, request that your data be sent elsewhere, or request that we delete your information. There are certain exceptions that apply to these rights, and the crew upholds them in accordance with the regional/local requirements, such as in relation to the EU General Data Protection Regulation (GDPR) and the implementing laws in the EU member states. As noted above, you always have the right to withdraw consent to our use of your data for any purpose. EU residents also have the right to contact their local supervisory authority.
Linked sites
Our website contains links to third-party (“external”) websites, and, occasionally, we may purchase space on a social media or other third-party site, such as Google maps, to provide information about our registry, our collaborators, or other contributors. The crew does not endorse or make any representations or warranties for the accuracy of content located on linked external websites and we are not responsible for any linked external website’s privacy policies, content, products, data collection procedures, materials, software, business activities, etc. We strongly encourage you to read and review the website and other policies of those organizations. Where possible, and in accordance with applicable laws, we also post our own website privacy statement for website users who visit the pages that the crew has included on those third-party sites.
Changes to this statement
We encourage you to review this statement periodically when you return to our site as we may update it from time to time to reflect changes to our practices, new requirements, and new security risks and safeguards. The changes become effective upon posting the new version of this statement, and those changes that relate to the use of personal information apply to information that is collected after posting.
Contact us
If you have any questions or if you have a complaint or claim about our data privacy practices, please contact us at the address below:
Chief Privacy Officer
FLUSH -IT study group
Medical Faculty
Christian Albrechts University
Christian Albrechts Platz 4
Kiel, Schleswig Holstein
Germany
Email: Privacy@etpr.eu